Comprehensive, easy-to-understand information about this condition
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The Akari Foundation educates and empowers the Hispanic community about rare diseases, helping with resources, awareness, advocacy, and education entirely in Spanish, specializing in Duchenne muscular dystrophy. Founded in 2017, they serve families across the US, Puerto Rico, Mexico, and Latin America.
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.