Accelerate Rare Disease Progress Together
Whether you're a healthcare professional, patient advocacy group, researcher, or industry partner - there's a way to amplify your impact through RareConnect.io
For Healthcare Professionals
Become a Report Steward
Your clinical expertise is invaluable. As a verified healthcare professional, you can directly edit disease reports, ensuring patients receive accurate, up-to-date information. Stewards take ownership of specific disease pages, keeping them current as medical knowledge evolves.
- Direct editing privileges after verification
- Recognition as an expert contributor
- Connect with patients seeking specialists
- Contribute to patient education at scale
Report Stewardship
Claim disease reports in your specialty. Your expertise ensures patients get reliable information.
Your Unique Identifier
RDCP:PAG0000001
Permanent. Global. Yours.
For Patient Advocacy Groups
Amplify Your Organization's Reach
Join the world's most comprehensive PAG registry. Whether you're a small foundation or an established nonprofit, RareConnect.io helps patients find you and gives your organization a permanent, verifiable identity.
- Free listing with unique RDCP:PAG identifier
- Connect with patients seeking support
- Link to relevant disease pages automatically
- Verified badge builds patient trust
Looking for more? Premium tiers offer analytics, custom branding, priority search placement, and team management.
For Researchers & Institutions
Collaborate on Knowledge
RareConnect.io is built on open biomedical ontologies and welcomes collaboration with the research community. Link your publications, update disease pages with the latest findings, and help build a resource that benefits patients worldwide.
- Link research publications to disease pages
- Update disease information with new findings
- Connect with patient communities for recruitment
- Contribute to open rare disease knowledge
Research Integration
Built on MONDO ontology and Monarch Initiative data. Designed for interoperability with research infrastructure.
For Industry
Coming Soon: Industry Partnerships
We're building pathways for pharmaceutical and biotech companies to engage authentically with the rare disease community. From disease awareness sponsorships to clinical trial recruitment partnerships, we're designing programs that benefit patients first.
Our Promise: Any industry partnership will be transparently disclosed and designed to benefit the patient community first.
Let's Build the Future Together
Have a partnership idea we haven't covered? We're always looking for creative ways to accelerate rare disease progress.