An ABCD1 deficiency that presents with primary adrenocortical insufficiency between age two years and adulthood and most commonly by age 7.5 years, without evidence of neurologic abnormality; however, some degree of neurologic disability (most commonly adrenomyeloneuropathy (AMN)) usually develops by middle age.
Comprehensive, easy-to-understand information about this condition
Checking for content...
Adrenal Insufficiency United (AIU) was founded in 2011 by parents of children with adrenal insufficiency. AIU provides support and education to those of all ages and types of AI through Facebook groups, Video Support Sessions, Conferences and Local Gatherings.
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
No external resources available.